As with previous Symposia, the aim is to promote a supportive international community for both BHD researchers and patients. In fact, Colledge & Solly (2012) recently discussed the BHD Symposia and how they can be used as a model for other rare disease meetings.
Details from the previous BHD Symposia can be found on our Conferences and Events page. In particular, the Fourth BHD Symposium was the largest meeting to date, which provided an excellent environment for discussions and collaborations. Further highlights from the scientific and patient sessions of this meeting can be found in our blog here and here respectively.
In the meantime, please do check BHDSyndrome.org for more information about the Fifth BHD Symposium as it becomes available.
- Colledge VL, Solly J. The rare disease challenge and how to promote a productive rare disease community: case study of Birt-Hogg-Dubé symposia. Orphanet J Rare Dis. 2012 Sep 5;7:63. doi: 10.1186/1750-1172-7-63. PMID: 22950632
www.bhdsyndrome.org – the primary online resource for anyone interested in BHD Syndrome.