Thank you very much for taking the time to complete our blog survey. We had a good response with many positive comments. In particular, we are pleased to hear that so many of you found the blog informative with regards to the current state of BHD research. Nevertheless, do feel free to comment or ask questions about any blog post by filling in the form below it – the BHD Research blog is freely accessible to all, and you can read all posts and comment on an existing post without registering. Additionally, if at any stage you would like to give us more feedback about the blog or any other aspect of BHDSyndrome.org, please do not hesitate to email your comments to [email protected]. We positively encourage discourse within the BHD community and will endeavour to respond to any specific queries as soon as possible.
Within our blog survey, we did receive some specific comments and questions, but we are unable to reply directly as it was an anonymous questionnaire. However, do feel free to post these within our Forum topic entitled Living with BHD Syndrome. It is also possible to email [email protected] with any questions that you would like posted anonymously on the Forum. Here you can connect with the international BHD community and share as much or as little as you wish. Further information can also be found in the For Families section of the website, where you can learn more about the range of symptoms of BHD syndrome, as well as their diagnosis and treatment in our information pamphlets.
Alternatively, come join us at the Fourth BHD Symposium in Cincinnati, USA on 28th – 30th March 2012. Here you can meet the scientists and clinicians studying BHD syndrome, and hear about their latest work first-hand. Further information regarding the Symposium will be available in the near future, so do check back soon!
Additionally, the winner of the survey draw for a £500 in-kind contribution (or local currency equivalent) towards attendance at the Fourth BHD Symposium will be contacted by email by 1st December 2011.
www.bhdsyndrome.org – the primary online resource for anyone interested in BHD Syndrome.