Familial Cancer Syndromes is a relatively new online resource that can be found here. As the title suggests it provides detailed scientific information on several inherited syndromes, more specifically there is now a chapter on BHD Syndrome that researchers and the general public may find useful. I find it reassuring to see references to BHD Syndrome are becoming more common than say a year ago, and I feel that this can only help to increase awareness of this disease.
www.bhdsyndrome.org – the primary reference site for anyone interested in BHD Syndrome