The Third BHD Symposium concluded yesterday after two days of fascinating talks, informative posters and stimulating discussion. It was a delight to see the largest gathering yet of the BHD community in the picturesque city of Maastricht: researchers, health professionals and patients, from seasoned participants to new attendees. Highlights of both the scientific and patient sessions will be available within the next few weeks.
In the meantime, there have been several updates to BHDSyndrome.org that we would like to present. Recently, a new function has been introduced: the like button (as seen at the end of this post). It is now possible to ‘like’ all posts in the Forum and News, as well as Written Interviews and Personal Stories. Just click on the thumbs-up icon to let everyone know when there’s a great story or post! You don’t need to be logged on and the process is completely anonymous.
In addition, following on from Professor Eamonn Maher’s video interview, two new researcher interviews have been uploaded. We are pleased to introduce Dr Andy Tee of Cardiff University and Dr Richard Harbottle of Imperial College London. Watch their video interviews to hear about their ongoing research in understanding and treating BHD syndrome. Keep checking the Video Interviews page as more videos will be going up soon!
Finally, don’t forget to take a look at BHD Worldwide. See where BHD families are located and share your own location on the map. It’s up to you how much information is displayed and confidentiality is strictly maintained. As always, feedback on all aspects of the website is most welcome. Don’t hesitate to email contact@BHDSyndrome.org or post on the Forum to offer suggestions, improvements or any other comments.
www.bhdsyndrome.org – the primary online resource for anyone interested in BHD Syndrome.