Patients and Families at the Third BHD Symposium, 11th and 12th May

The Third BHD Symposium is fast approaching in little over two weeks! We have already posted introductions of keynote speakers, and discussion of the sights of Maastricht. Now has come the time to present the Patients and Families Programme.

BHD-focussed sessions will be on the 11th; those for HLRCC will take place on the 12th. The goal of these two days is to allow for sharing of advice, information, and encouragement. There will be informal discussions with medical professionals, who are experienced and highly knowledgeable in BHD syndrome, including clinicians and a genetic counsellor. Talks on new research in clinical practice will be open both for patients and researchers. In addition, patients are welcome to attend any of the other researcher sessions. During lunch and breaks there will be lots of time for getting to know each other. More details can be found here.

Registration is possible for one day or two, at 50 EUR per day. We sincerely encourage all to register. Given the rarity of BHD syndrome, occasions to meet together are few and therefore all the more valuable.  Attendees are coming from as far away as Japan and Ohio, USA. We hope to make it as flexible as possible for you to attend. If there is anything with which we can help, please do not hesitate to email [email protected]

Following the response to the patient programme at the Second BHD Symposium in Washington D.C., we anticipate the meeting will be enjoyable and useful, whether sharing dinner with BHD patients from other cities and other countries, asking a pulmonologist questions about pneumothorax and pleurodesis, or finding out how much we already know about BHD and learning where BHD research is going.

Why hesitate? Register to spend time in Maastricht with everyone who is dedicated to overcoming BHD!

www.bhdsyndrome.org – the primary online resource for anyone interested in BHD Syndrome.

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